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Dec 5, 2021

Impact of Age-related Macular Degeneration Survey

Background to study:

Approximately 11 million people are living with age-related macular degeneration (AMD) in the United States. Yet despite this, up-to-date data regarding the impact on individuals, their families and the economy is lacking.

 

Addressing this knowledge gap, Retina International (RI) is conducting a global study to better understand the real impact of AMD. This includes the dry form referred to as geographic atrophy (GA) and the neovascular form referred to as wet age-related macular degeneration (wAMD). For the purpose of this study, only moderate to severe forms of GA are included when referring to GA.

 

To capture the lived experience, we are inviting people affected by AMD and their caregivers to complete a survey questionnaire. This should take approximately 20 minutes to complete.

 

Why this study is important?

Information collected through this survey will inform knowledge and understanding of:

  • the impact on the daily living and wellbeing of individuals living with AMD and people who provide support and care for those living with AMD;
  • the economic cost of AMD to health and social care, employment, and carers.

Study findings will then provide the evidence to guide future research and advocate towards access to early diagnosis, care pathways, support services, and treatments.

 

How to participate?

People diagnosed with geographic atrophy (GA) or wet age-related macular degeneration (wAMD) and their caregivers are invited to complete the survey at the following links:

 

Patient Survey Link: https://www.surveymonkey.com/r/GA-wAMD-Patient-Impact-Study_English

 

Caregiver Survey Link: https://www.surveymonkey.com/r/GA-wAMD-Caregiver-Impact-Study_English

 

 

Further Information

If you have any queries or would like assistance to complete survey, please contact laura.brady@retina-interational.org

 

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