Press Release
Hello,
The Macular Degeneration Association is one of the 1,200+ patient advocacy organizations (PAOs) in the United States working to support patients and caregivers. However, many people may not be aware that organizations like ours exist, let alone how PAOs can benefit patients, their caregivers, and the healthcare community overall.
This is why we are excited to participate in the second annual Patient Advocacy Organization (PAO) Action Week™ from June 9-13. The campaign will raise awareness of the critical role played by patient-centric organizations and help connect patients and caregivers to relevant PAOs.
While we are just one of the many PAOs participating, we would appreciate your support in highlighting our efforts and this PAO Action Week initiative. You could discuss the campaign or talk about some of the different PAOs in serving the National area.
This campaign collaboration includes PAOs, life sciences companies, healthcare organizations, academic institutions, professional membership organizations, and other advocates across the country working to amplify the value and importance of PAOs for patients and caregivers. Information for patients and caregivers to help locate and engage with a relevant PAO can be found on the PAO Action Week website (paoactionweek.com).
Donna Auger
donna@macularhope.org
About Patient Advocacy Organization (PAO) Action Week
PAO Action Week is a community campaign supported by PAOs, life sciences companies, healthcare organizations, academic institutions, professional associations, and medical societies. The focus of PAO Action Week is raising awareness of the value and importance of patient advocacy organizations and encouraging patients and caregivers to engage with a PAO that is meaningful to them. The program was developed by Astellas Pharma Inc., and the first campaign was conducted in 2024. This year, PAO Action Week is scheduled for June 9-13, 2025, in the United States. For more information about the campaign, visit paoactionweek.com or contact paoactionweek@astellas.com.